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design-knowledge/consent-self-management-hie-dr3

Producer label: DR3
Source paper: Blockchain innovation for consent self-management in health information exchanges
Timestamp: 2026-08-05T00:00:00+00:00
Bundle path: design-knowledge/consent-self-management-hie-dr3.md

consent-managementconsent-self-management-hiedesign-requirementhealthcareinteroperabilityprivacy

Design requirement DR3: Trust

The solution must build and maintain patient trust in health information exchange by giving patients control over and visibility into their consent relationships, since patient trust is critical to the rights patients have to control the sharing of their protected health information.

Source paper

This design requirement is proposed by Blockchain innovation for consent self-management in health information exchanges (Chad Anderson, Arthur Carvalho, Mala Kaul, Jeffrey W. Merhout, 2023).

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2 Design Principles

design-knowledge/consent-self-management-hie-dp2

DP2 - Patient-only consent changes

Only the patient can change their consent status, supporting self-management and engendering patient trust.

consent-managementconsent-self-management-hiedesign-principlehealthcare+2

design-knowledge/consent-self-management-hie-dp3

DP3 - Auditable consent history

The history of consent transactions between patients and the HIE must be auditable so that compliance with consent laws can be verified for all transactions.

consent-managementconsent-self-management-hiedesign-principlehealthcare+2

1 Paper

papers/consent-self-management-hie

Blockchain innovation for consent self-management in health information exchanges

Having established patients' desire to self-manage consent, the paper proposes a permissioned-blockchain solution enabling seamless sharing of patient consent across providers and HIEs, formalized through five design requirements, five design principles and five design features, and evaluated with a prototype.

blockchainconsent-managementconsent-self-management-hiedesign-science-research+3

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Blockchain innovation for consent self-management in health information exchanges
Paper
Source
DR3 - Trust
Target
Blockchain innovation for consent self-management in health information exchanges
Link label
Blockchain innovation for consent self-management in health information exchanges
Status
Resolved
Derived heading context: Source paper

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{
  "type": "design-requirement",
  "title": "DR3 - Trust",
  "description": "The solution must build and maintain patient trust in health information exchange by giving patients control over and visibility into their consent relationships, since patient trust is critical to the rights patients have to control the sharing of their protected health information.",
  "resource": "https://doi.org/10.1016/j.dss.2023.114021",
  "source_paper": "Blockchain innovation for consent self-management in health information exchanges",
  "label": "DR3",
  "tags": [
    "consent-self-management-hie",
    "design-requirement",
    "healthcare",
    "consent-management",
    "privacy",
    "interoperability"
  ]
}