Research paper

Blockchain innovation for consent self-management in health information exchanges

Having established patients' desire to self-manage consent, the paper proposes a permissioned-blockchain solution enabling seamless sharing of patient consent across providers and HIEs, formalized through design requirements, principles and features and evaluated with a prototype.

PaperOpen source resource ↗

Overview

Publication metadata and narrative from the current library record.

Authors: Chad Anderson, Arthur Carvalho, Mala Kaul, Jeffrey W. Merhout
Year: 2023
Venue: Decision Support Systems 174 (2023) 114021
Methodology: Design science research; patient survey of willingness to self-manage consent; instantiated prototype; quantitative evaluation.

blockchainconsent-managementconsent-self-management-hiedesign-science-researchhealthcareinteroperabilityprivacy

Blockchain innovation for consent self-management in health information exchanges

Authors: Chad Anderson, Arthur Carvalho, Mala Kaul, Jeffrey W. Merhout
Venue: Decision Support Systems 174 (2023) 114021
Link: https://doi.org/10.1016/j.dss.2023.114021 (opens in a new tab)

Summary

Artifact

A blockchain-based, self-managed patient consent system for health information exchanges (HIEs).

Methodology

Design science research; patient survey of willingness to self-manage consent; instantiated prototype; quantitative evaluation.

Citations

[1] Chad Anderson, Arthur Carvalho, Mala Kaul, Jeffrey W. Merhout. Blockchain innovation for consent self-management in health information exchanges. Decision Support Systems 174 (2023) 114021. https://doi.org/10.1016/j.dss.2023.114021 (opens in a new tab) [2] Source document: Blockchain innovation for consent self-management in health information exchanges.pdf

DSR grid

Six dimensions represented in the current paper record.

Problem description

Patients lack effective means to self-manage consent for sharing protected health information, and interoperability gaps and regulatory heterogeneity across health information exchanges (HIEs) compound the problem.

Input knowledge

Digital patient-consent-management literature; trust; decision models for assessing blockchain suitability; HIE architectures and regulation.

Research process

Design science research: a survey of patients' willingness to self-manage consent, followed by an instantiated prototype and quantitative evaluation.

Key concepts

Patient consent, health information exchange, blockchain, protected health information, trust.

Solution description

A permissioned-blockchain, self-managed patient consent system enabling seamless cross-HIE sharing of consent. Solution-space representation: Instantiation (prototype) plus design principles (nascent design theory).

Output knowledge

Five design principles for patient consent self-management across HIEs.

Design knowledge

Directly linked concepts, grouped by their represented design-knowledge category.

Design Principle

Design Principle5

Design Principle

design-knowledge/consent-self-management-hie-dp1

DP1 - Authorization-restricted consent visibility

Only HIEs and providers with authorization can view a patient's consent status, maintaining confidentiality.

consent-managementconsent-self-management-hiedesign-principlehealthcare+2

Design Principle

design-knowledge/consent-self-management-hie-dp2

DP2 - Patient-only consent changes

Only the patient can change their consent status, supporting self-management and engendering patient trust.

consent-managementconsent-self-management-hiedesign-principlehealthcare+2

Design Principle

design-knowledge/consent-self-management-hie-dp3

DP3 - Auditable consent history

The history of consent transactions between patients and the HIE must be auditable so that compliance with consent laws can be verified for all transactions.

consent-managementconsent-self-management-hiedesign-principlehealthcare+2

Design Principle

design-knowledge/consent-self-management-hie-dp4

DP4 - Cross-HIE consent communication without central authority

HIEs should be able to communicate consent status across HIEs without a central authority, supporting interoperability.

consent-managementconsent-self-management-hiedesign-principlehealthcare+2

Design Principle

design-knowledge/consent-self-management-hie-dp5

DP5 - Patient-driven cross-HIE consent updates

Enable patients to share changes in their consent status across HIEs.

consent-managementconsent-self-management-hiedesign-principlehealthcare+2

Paper design map

The default semantic design map canonicalizes stored design relationships; Raw links retains the complete technical Markdown-link view.

Design-knowledge map

5 stored concepts / 0 canonical semantic relationships

Concept types

Show relationship labels

Publication metadata

Additional metadata represented in the current library record.

Show additional metadata

{
  "type": "paper",
  "title": "Blockchain innovation for consent self-management in health information exchanges",
  "description": "Having established patients' desire to self-manage consent, the paper proposes a permissioned-blockchain solution enabling seamless sharing of patient consent across providers and HIEs, formalized through design requirements, principles and features and evaluated with a prototype.",
  "resource": "https://doi.org/10.1016/j.dss.2023.114021",
  "authors": "Chad Anderson, Arthur Carvalho, Mala Kaul, Jeffrey W. Merhout",
  "year": 2023,
  "venue": "Decision Support Systems 174 (2023) 114021",
  "methodology": "Design science research; patient survey of willingness to self-manage consent; instantiated prototype; quantitative evaluation.",
  "dsr_grid": true,
  "dsr_solution_space": "Instantiation (prototype) plus design principles (nascent design theory).",
  "tags": [
    "consent-self-management-hie",
    "healthcare",
    "consent-management",
    "privacy",
    "interoperability",
    "design-science-research",
    "blockchain"
  ]
}