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design-knowledge/consent-self-management-hie-dr5

Producer label: DR5
Source paper: Blockchain innovation for consent self-management in health information exchanges
Timestamp: 2026-08-05T00:00:00+00:00
Bundle path: design-knowledge/consent-self-management-hie-dr5.md

consent-managementconsent-self-management-hiedesign-requirementhealthcareinteroperabilityprivacy

Design requirement DR5: Interoperability

The solution must be interoperable across the currently fragmented health information exchange infrastructure to enable full self-management of consent, since the range of HIE organizational forms is each designed to support connectivity for only a limited set of entities.

Source paper

This design requirement is proposed by Blockchain innovation for consent self-management in health information exchanges (Chad Anderson, Arthur Carvalho, Mala Kaul, Jeffrey W. Merhout, 2023).

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2 Design Principles

design-knowledge/consent-self-management-hie-dp4

DP4 - Cross-HIE consent communication without central authority

HIEs should be able to communicate consent status across HIEs without a central authority, supporting interoperability.

consent-managementconsent-self-management-hiedesign-principlehealthcare+2

design-knowledge/consent-self-management-hie-dp5

DP5 - Patient-driven cross-HIE consent updates

Enable patients to share changes in their consent status across HIEs.

consent-managementconsent-self-management-hiedesign-principlehealthcare+2

1 Paper

papers/consent-self-management-hie

Blockchain innovation for consent self-management in health information exchanges

Having established patients' desire to self-manage consent, the paper proposes a permissioned-blockchain solution enabling seamless sharing of patient consent across providers and HIEs, formalized through five design requirements, five design principles and five design features, and evaluated with a prototype.

blockchainconsent-managementconsent-self-management-hiedesign-science-research+3

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Blockchain innovation for consent self-management in health information exchanges
Paper
Source
DR5 - Interoperability
Target
Blockchain innovation for consent self-management in health information exchanges
Link label
Blockchain innovation for consent self-management in health information exchanges
Status
Resolved
Derived heading context: Source paper

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{
  "type": "design-requirement",
  "title": "DR5 - Interoperability",
  "description": "The solution must be interoperable across the currently fragmented health information exchange infrastructure to enable full self-management of consent, since the range of HIE organizational forms is each designed to support connectivity for only a limited set of entities.",
  "resource": "https://doi.org/10.1016/j.dss.2023.114021",
  "source_paper": "Blockchain innovation for consent self-management in health information exchanges",
  "label": "DR5",
  "tags": [
    "consent-self-management-hie",
    "design-requirement",
    "healthcare",
    "consent-management",
    "privacy",
    "interoperability"
  ]
}